The utilization of a qualitative research approach integrated with human centered
design methods in understanding the sequel of incontinence secondary to spina bifida
(SB) represents a novel approach to treatment. The use of mind, challenge and experience
mapping is intriguing and “shines light’ on connections which may otherwise have gone
unnoticed.
Abbreviations:
SB (Spina Bifida)To read this article in full you will need to make a payment
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References
Szymanski KM, Misseri R, Carroll AE, et al. A patient- and parent-centered approach to urinary and fecal incontinence in children and adolescents with spina bifida: understanding experiences in the context of other competing care issues. JPU In press
- Quality of life and continence in patients with spina bifida.Qual Life Res. 2006; 15: 1481-1492
- Health related quality of life in patients with spina bifida: a prospective assessment before and after lower urinary tract reconstruction.J Urol. 2009; 182: 1984-1992
Article info
Publication history
Published online: November 17, 2022
Accepted:
November 3,
2022
Received:
November 3,
2022
Publication stage
In Press Journal Pre-ProofIdentification
Copyright
© 2022 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.
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Access this article on ScienceDirectLinked Article
- A patient- and parent-centered approach to urinary and fecal incontinence in children and adolescents with spina bifida: understanding experiences in the context of other competing care issuesJournal of Pediatric Urology
- PreviewDespite significant and known challenges to urinary and fecal incontinence (UI and FI, respectively) among children with spina bifida (SB) and their families, few studies have identified patient-centered measures and approaches to assessing them. This study represents the first stage of a larger study to develop a patient-centered goal-setting tool to guide incontinence management (Figure). Our aim was to understand patient experiences of UI and FI, and what goals should be included in the tool.
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