Advertisement

Response to commentary re a survey of healthcare professionals' perceptions of the decisional needs of parents with an infant born with a disorder/difference of sex development

  • Kristina I. Suorsa-Johnson
    Affiliations
    Division of Psychiatry and Behavioral Health, Department of Pediatrics, University of Utah Spencer Fox Eccles School of Medicine, Salt Lake City, USA
    Search for articles by this author
  • David E. Sandberg
    Affiliations
    Susan B. Meister Child Health Evaluation & Research (CHEAR) Center, University of Michigan, Ann Arbor, MI, USA

    Department of Pediatrics, Division of Pediatric Psychology, University of Michigan Medical School, Ann Arbor, MI, USA
    Search for articles by this author
  • Dawn Stacey
    Correspondence
    Correspondence to: Dawn Stacey, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
    Affiliations
    Ottawa Hospital Research Institute, Ottawa, Ontario, Canada

    School of Nursing, University of Ottawa, Ottawa, ON, Canada
    Search for articles by this author
Published:November 03, 2022DOI:https://doi.org/10.1016/j.jpurol.2022.10.032
      We appreciate this commentary on our paper that highlights the importance of involving parents/caregivers of children with differences of sex development (DSD) in shared decision making (SDM). In the following, we respond to comments about how the conclusions to the findings were interpreted based on our study methods.

      Abbreviations:

      SDM (shared decision making), DSD (differences of sex development), DSD-TRN (DSD Translational Research Network), HCP (health care professional)
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Journal of Pediatric Urology
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • Meyer V.M.
        • Benjamens S.
        • Moumni M.E.
        • Lange J.F.M.
        • Pol R.A.
        Global overview of response rates in patient and health care professional surveys in surgery: a systematic review.
        Ann Surg. 2022; 275: e75-e81https://doi.org/10.1097/SLA.0000000000004078
        • Lee P.A.
        • Houk C.P.
        • Ahmed S.F.
        • Hughes I.A.
        International consensus conference on intersex organized by the Lawson Wilkins pediatric endocrine society, the European society for paediatric endocrinology. Consensus statement on management of intersex disorders. International Consensus conference on intersex.
        Pediatrics. 2006; 118: e488-e500https://doi.org/10.1542/peds.2006-0738
        • Rolston A.M.
        • Gardner M.
        • van Leeuwen K.
        • Mohnach L.
        • Keegan C.
        • Delot E.
        • et al.
        Disorders of sex development (DSD): clinical service delivery in the United States.
        Am J Med Genet. 2017; 175: 268-278https://doi.org/10.1002/ajmg.c.31558
        • Hoefel L.
        • Lewis K.B.
        • O'Connor A.
        • Stacey D.
        20th anniversary update of the Ottawa Decision Support Framework: Part 2 subanalysis of a systematic review of patient decision aids.
        Med Decis Making. 2020; 40: 522-539https://doi.org/10.1177/0272989X20924645

      Linked Article