Advertisement

Commentary to Growing up with clitoromegaly: Experiences of North American women with congenital adrenal hyperplasia

      In the conversation surrounding medical necessity in genital surgery, the psychologic impact of variations in genitalia is heavily debated [

      Szymanski KM, Kokorowski P, Braga LH, Frady H, Whittam B, Hensel DJ. Growing up with clitoromegaly: experiences of North American women with congenital adrenal hyperplasia. J Pediatr Urol 2022;18:775–83

      ]. Many advocates for delaying surgery purport that psychologic impact is a result of outdated societal norms that should no longer exist, holding firm that bodily autonomy should supersede the potential negative psychological impact of variations in genitalia. Answering the question of whether there is or is not a detrimental impact (or potential for one) to one’s personal psyche by delaying surgical reconstruction is complicated at best, as individual experiences, cultural backgrounds, and underlying diagnoses are as unique as the genitalia itself. To further complicate this conversation, including CAH under the umbrella of intersex is also a topic of debate [
      • Szymanski K.M.
      • Rink R.C.
      • Whittam B.
      • Hensel D.J.
      Life with Congenital Adrenal Hyperplasia Study G. Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex.
      ].
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Journal of Pediatric Urology
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

      1. Szymanski KM, Kokorowski P, Braga LH, Frady H, Whittam B, Hensel DJ. Growing up with clitoromegaly: experiences of North American women with congenital adrenal hyperplasia. J Pediatr Urol 2022;18:775–83

        • Szymanski K.M.
        • Rink R.C.
        • Whittam B.
        • Hensel D.J.
        Life with Congenital Adrenal Hyperplasia Study G. Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex.
        J Pediatr Urol. 2021; 17 (210): e1-e9https://doi.org/10.1016/j.jpurol.2020.09.009

      Linked Article