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Parental decision regret among Australian parents after consenting to or refusing hypospadias repair for their son: Results of a survey with controls

  • Sergey Vavilov
    Correspondence
    Correspondence to: Sergey Vavilov, Children's Hospital at Westmead, Cnr Hawkesbury Rd &, Hainsworth St, Westmead, NSW 2145, Australia, Tel.: +61 (02) 9845 3235
    Affiliations
    School of Medicine and Public Health, The University of Newcastle, NSW, Australia

    Urology Unit, Department of Surgery, The Children's Hospital at Westmead, NSW, Australia
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  • Elysa Roberts
    Affiliations
    Department of Occupational Therapy, School of Health Sciences, The University of Newcastle, NSW, Australia
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  • Grahame H.H. Smith
    Affiliations
    Urology Unit, Department of Surgery, The Children's Hospital at Westmead, NSW, Australia

    Department of Paediatrics and Child Health, The University of Sydney, NSW, Australia
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  • Malcolm Starkey
    Affiliations
    Department of Immunology and Pathology, Central Clinical School, Monash University and Alfred Research Alliance, Melbourne, VIC, Australia

    School of Biomedical Sciences and Pharmacy, College of Health and Well Being, The University of Newcastle, NSW, Australia
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  • Peter Pockney
    Affiliations
    School of Medicine and Public Health, The University of Newcastle, NSW, Australia

    Discipline of Surgery, Medical School, The University of Western Australia, Perth, Australia
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  • Aniruddh V. Deshpande
    Affiliations
    School of Medicine and Public Health, The University of Newcastle, NSW, Australia

    Urology Unit, Department of Surgery, The Children's Hospital at Westmead, NSW, Australia

    Faculty of Medicine, The University of Sydney, NSW, Australia
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      Summary

      Introduction

      Parental decision regret in hypospadias surgery is a recognised source of long-lasting psycho-social morbidity. High parental decision regret after their child's hypospadias repair is reported. The aim of this study is to report on decision regret in Australian parents, who accepted and declined surgery for their son and explore underlying factors for decision-making, satisfaction, and regret.

      Materials and methods

      An online anonymous survey was administered to three groups of parents: 1) parents who consented for hypospadias repair, 2) parents who declined repair and 3) a control group who requested circumcision for their child. Operations occurred between 2010 and 2020 in two paediatric hospitals in New South Wales, Australia. The survey included a validated decision regret assessment tool and additional questions to explore the possible basis of the opinions.

      Results

      One hundred and eighteen parents (invited - 381, completed – 116, response rate - 31%) participated in the survey. Decision regret was present in group 1 (n = 89) – 55% (moderate-to-severe 15%), in group 2 (n = 14) – 71% (moderate-to-severe 57%), and in the control group (n = 15) – 15% (moderate-to-severe 8%) of parents. There was a significant difference in the median decision regret score between all three groups. Parents who chose hypospadias repair were mostly concerned about function.

      Conclusions

      Summary Figure
      Graphical AbstractMedian decision regret score (DRS) in three groups of parents: group 1 - parents who consented for hypospadias repair; group 2 - parents who declined repair, and group 3 - control group who requested circumcision for their child.

      Keywords

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