Real-life significance of decisional regret scores among parents of girls with CAH undergoing surgery: Why they do not necessarily mean parents wish they had made a different choice

  • Konrad M. Szymanski
    Correspondence
    Correspondence to: Konrad M. Szymanski, Division of Pediatric Urology, Riley Hospital for Children at IU Health, 705 Riley Hospital Dr., Suite 4230, Indianapolis, IN 46202, USA, Tel.: +(317) 944 7446; fax: +(317) 944 7481
    Affiliations
    Riley Hospital for Children, Indianapolis, IN, USA
    Search for articles by this author
Published:November 23, 2021DOI:https://doi.org/10.1016/j.jpurol.2021.10.028
      Early parental decisions about genital surgery in children born with atypical genitalia is the most controversial area of pediatric urology today. Parental decisional regret (DR), measured by the DR Scale (DRS), is one way of assessing parental perceptions of their decisions. Fisher et al. assessed DR among 55 parents of girls with congenital adrenal hyperplasia (CAH) undergoing genital surgery in childhood, illustrating several important points [
      • Fisher R.S.
      • Espeleta H.C.
      • Baskin L.S.
      • Buchanan C.L.
      • Chan Y.
      • Cheng E.Y.
      • et al.
      Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH.
      ].
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic and Personal
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Journal of Pediatric Urology
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • Fisher R.S.
        • Espeleta H.C.
        • Baskin L.S.
        • Buchanan C.L.
        • Chan Y.
        • Cheng E.Y.
        • et al.
        Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH.
        J Pediatr Urol. 2021 Oct 25; (S1477-5131(21)00465-4)
        • Szymanski K.M.
        • Whittam B.
        • Kaefer M.
        • Frady H.
        • Casey J.T.
        • Tran V.T.
        • et al.
        Parental decisional regret and views about optimal timing of female genital restoration surgery in congenital adrenal hyperplasia.
        J Pediatr Urol. 2018; 14: 156 e1-e7https://doi.org/10.1016/j.jpurol.2017.11.012
        • Bethell G.S.
        • Chhabra S.
        • Shalaby M.S.
        • Corbett H.
        • Kenny S.E.
        • Contributors B.N.
        Parental decisional satisfaction after hypospadias repair in the United Kingdom.
        J Pediatr Urol. 2020; 16: 164 e1-e7https://doi.org/10.1016/j.jpurol.2020.01.005
        • Carr M.M.
        • Printz J.
        • Thakur S.
        Decisional regret following ventilation tube insertion.
        Int J Pediatr Otorhinolaryngol. 2017; 99: 36-39https://doi.org/10.1016/j.ijporl.2017.05.014

      Linked Article