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Barriers in transitioning urologic patients from pediatric to adult care

  • Wietse Claeys
    Correspondence
    Correspondence to: Wietse Claeys, Department of Urology, Ghent University Hospital, Corneel Heymanslaan 10, 9000, Ghent, Belgium. Tel.: +3293321702
    Affiliations
    Ghent University, Corneel Heymanslaan 10, 9000, Ghent, Belgium

    Department of Urology, Ghent University Hospital, Corneel Heymanslaan 10, 9000, Ghent, Belgium
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  • Joshua D. Roth
    Affiliations
    Ghent University, Corneel Heymanslaan 10, 9000, Ghent, Belgium

    Division of Pediatric Urology, Riley Hospital for Children, Indiana University School of Medicine, 705 Riley Hospital Drive, Suite 4230, Indianapolis, IN, 46202, USA
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  • Piet Hoebeke
    Affiliations
    Ghent University, Corneel Heymanslaan 10, 9000, Ghent, Belgium

    Department of Urology, Ghent University Hospital, Corneel Heymanslaan 10, 9000, Ghent, Belgium
    Search for articles by this author
Published:December 21, 2020DOI:https://doi.org/10.1016/j.jpurol.2020.12.020

      Summary

      As the advances in medicine continue to emerge, more children with congenital or pediatric-onset chronic urologic conditions are surviving well into adulthood. This imposes an ever rising there is a need for adequate transition of these patients from pediatric to adult care. Despite position statements from multiple heath care organizations and several models proposed in literature, different issues and gaps in urologic transition continue to exist. Major barriers in this transition are adolescence, a challenging time that is characterized by impulsive behavior and risk taking, and the longstanding relation between both patients and paediatric providers. Both pediatric and adult care providers need to be aware of the special needs of maturing youth with chronic care problems related to education, self-management, legal issues and psychological support during care transition. Furthermore, they need to understand and address the currently existing obstacles for adequate transition. There is need for active communication with each other and the patient to develop sustainable relationships that can support the transitioning process. It is therefore in the greatest interest of the care provider to make this transition as smooth as possible. This paper aims to point out the currently perceived barriers in care transition within the urological context, reflect on previous implemented models for care transition and present proposals for improvement.

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