Two subpopulations appear to exist among women with CAH born with atypical genitalia.
The majority and minority groups differ greatly in their viewpoints regarding identifying
as intersex, being legally designated as intersex, and (as a soon to be published
subsequent report from this study indicates) legislation banning early surgery. This
provides only further support that these challenging decisions should be made thoughtfully
and in a supportive multidisciplinary environment, not legislated with a “one size
fits all” approach. These early treatment decisions remain an extremely complex issue
that requires input from parents with the support of physicians, ethicists and mental
health experts, all within the context of the patient and family's social situation.
As healthcare providers, it is our duty to honestly share and distinguish what we
know (data) and do not know (anecdotes) about controversies surrounding treatments.
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Article info
Publication history
Published online: December 17, 2020
Accepted:
December 8,
2020
Received:
December 7,
2020
Identification
Copyright
© 2020 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.
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Access this article on ScienceDirectLinked Article
- Commentary to ‘Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex’Journal of Pediatric UrologyVol. 17Issue 2
- PreviewDespite our evolution to a multidisciplinary care paradigm, despite exponential increases in our medical knowledge, and despite use of that knowledge for shared decision-making with families, we are faced with ongoing controversy in the care of individuals born with differences of sex development, regardless of etiology.
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