Despite our evolution to a multidisciplinary care paradigm, despite exponential increases
in our medical knowledge, and despite use of that knowledge for shared decision-making
with families, we are faced with ongoing controversy in the care of individuals born
with differences of sex development, regardless of etiology.
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References
- Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex..J Pediatr Urol. 2020;
- Gender dysphoria and gender change in chromosomal females with congenital adrenal hyperplasia.Arch Sex Behav. 2005 Aug; 34 (PMID: 16010462): 389-397https://doi.org/10.1007/s10508-005-4338-5
- Gender dysphoria and XX congenital adrenal hyperplasia: how frequent is it? Is male-sex rearing a good idea?.J Pediatr Surg. 2019 Nov; 54 (Epub 2019 Feb 22. PMID: 30905417): 2421-2427https://doi.org/10.1016/j.jpedsurg.2019.01.062
Article info
Publication history
Published online: December 15, 2020
Accepted:
November 27,
2020
Received:
November 27,
2020
Identification
Copyright
© 2020 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.
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Access this article on ScienceDirectLinked Article
- Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersexJournal of Pediatric UrologyVol. 17Issue 2
- Response to commentary re ‘Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex'Journal of Pediatric UrologyVol. 17Issue 2
- PreviewTwo subpopulations appear to exist among women with CAH born with atypical genitalia. The majority and minority groups differ greatly in their viewpoints regarding identifying as intersex, being legally designated as intersex, and (as a soon to be published subsequent report from this study indicates) legislation banning early surgery. This provides only further support that these challenging decisions should be made thoughtfully and in a supportive multidisciplinary environment, not legislated with a “one size fits all” approach.
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