Summary
Purpose
Hydronephrosis is a common pediatric abnormality and can be associated with substantial
parental anxiety, especially in the prenatal period. Radiology reports contain complex
content that can be difficult for lay audiences to comprehend, potentially contributing
to parental distress.
Materials and methods
We developed and piloted a patient-centered radiology report (PCRR) for renal ultrasounds
(US) in children with hydronephrosis (Figure). We obtained consensus from a multidisciplinary
panel of experts regarding critical US report components. A parent focus group provided
input regarding syntax and formatting of a PCRR, incorporating elements deemed valuable
by the expert panel. We prospectively recruited parents of children who underwent
US for hydronephrosis and randomized parents to receive either the PCRR + standard
report (SR) or SR alone. Web-based surveys assessed self-efficacy and knowledge of
US elements.
Results
Our pilot study included 20 SR patients and 24 PCRR patients, with no difference in
demographic or disease characteristics between groups. Self-efficacy scores were uniformly
high in both groups (p = 0.79). PCRR parents trended towards increased accuracy in identifying presence
of severity (88% vs. 70%; p = 0.15) and bilaterality (67% vs. 45%; p = 0.15), with minimal difference in identifying parenchymal pathology (75% vs. 70%;
p = 0.71) and bladder abnormalities (88% vs. 85%; p = 0.81). Parents were more confident in their ability to understand the PCRR (92%
vs. 60%; p = 0.01).
Conclusions
Graphical AbstractStudy methods.
Keywords
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Article info
Publication history
Published online: September 28, 2017
Accepted:
August 25,
2017
Received:
April 3,
2017
Identification
Copyright
© 2017 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.
